Policy & Research
Payment
- Coding Resources from the American Academy of Family Physicians
- Coding Resources from the American Academy of Pediatrics
- Coding Resources from the American College of Physicians
- Coding Resources from the American Medical Association
- A Guide for Designing a Value-Based Payment Initiative for Pediatric-to-Adult Transitional Care with funding from the Lucile Packard Foundation for Children’s Health
- Webinar Recording: Designing Value-Based Payment (VBP) Innovations for Pediatric-to-Adult Transitional Care: Lessons from the Field with funding from the Lucile Packard Foundation for Children’s Health
- Webinar Slides: Designing Value-Based Payment (VBP) Innovations for Pediatric-to-Adult Transitional Care: Lessons from the Field with funding from the Lucile Packard Foundation for Children’s Health
- Recommendations for Value-Based Transition Payment for Pediatric and Adult Health Care Systems: A Leadership Roundtable Report by The National Alliance to Advance Adolescent Health
- The Business Case for Pediatric-to-Adult Health Care Transition with funding from the Lucile Packard Foundation for Children’s Health
Got Transition Resources
- 2022 Coding and Payment Tip Sheet for Transition from Pediatric to Adult Health Care in partnership with the American Academy of Pediatrics
- Letter Template for Pediatric to Adult Transition Codes in partnership with the American Academy of Pediatrics
- Medicaid Managed Care Contract Language to Expand the Availability of Pediatric-to-Adult Transitional Care with funding from Lucile Packard Foundation for Children's Health
- Webinar Recording: Medicaid Managed Care Contract Provisions for Pediatric to Adult Transitional Care: Suggested Options and State Examples with funding from Lucile Packard Foundation for Children's Health
- Webinar Slides: Medicaid Managed Care Contract Provisions for Pediatric to Adult Transitional Care: Suggested Options and State Examples with funding from Lucile Packard Foundation
Systematic and Scoping Reviews on HCT
- Disparities and outcomes of patients living with Down Syndrome undergoing healthcare transitions from pediatric to adult care: A scoping review by Varshney et al (2022)
- Biopsychosocial Factors Related to Transition Among Adolescents and Young Adults with Sickle Cell Disease: A Systematic Review by Rea et al (2021)
- Somatic Outcomes of Young People with Chronic Diseases Participating in Transition Programs: A Systematic Review by Becker al (2020)
- Psychosocial Benefit and Adherence of Adolescents with Chronic Diseases Participating in Transition Programs: A Systematic Review by Ravens et al (2020)
- Patients’ attitudes and experiences of transition from paediatric to adult healthcare in rheumatology: a qualitative systematic review by Kelly et al (2020)
- Youths' Experiences of Transition from Pediatric to Adult Care: An Updated Qualitative Metasynthesis by Varty et al (2020)
- Healthcare Retention and Clinical Outcomes Among Adolescents Living with HIV after Transition from Pediatric to Adult Care: A Systematic Review by Ritchwood et al (2020)
- Transition from Pediatric to Adult Follow-Up Care in Childhood Cancer Survivors: A Systematic Review by Otth et al (2020)
- Systematic Narrative Review of Pediatric-to-Adult Care Transition Models for Youth with Pediatric-Onset Chronic Conditions by Marani et al (2020)
- Identifying Core Components and Indicators of Successful Transitions from Child to Adult Mental Health Services: A Scoping Review by Cleverley et al (2020)
- Spotlight on Transition in Patients with Inflammatory Bowel Disease: A Systematic Review by Eros et al (2020)
- Outcomes of Pediatric to Adult Health Care Transition Interventions: An Updated Systematic Review by Schmidt et al (2020)
- Recommendations for Successful Transition of Adolescents with Inflammatory Bowel Diseases to Adult Care by Shapiro et al (2020)
- Methods for Measuring the Time of Transfer from Pediatric to Adult Care for Chronic Conditions Using Administrative Data: A Scoping Review by Shulman, et al (2020)
- Outcomes of Young People Who Reach the Transition Boundary of Child and Adolescent Mental Health Services: A Systematic Review by Appleton et al (2019)
- Transitioning Adolescents to Adult Nephrology Care: A Systematic Review of the Experiences of Adolescents, Parents, and Health Professionals by Crawford et al (2019)
- Disparities Based on Race, Ethnicity, and Socioeconomic Status Over the Transition to Adulthood Among Adolescents and Young Adults on the Autism Spectrum: a Systematic Review by Eilenberg et al (2019)
- An Evidence Map for Interventions Addressing Transition from Pediatric to Adult Care: A Systematic Review of Systematic Reviews by Hart et al (2019)
- Review: Transition from Child and Adolescent Mental Health Services (CAMHS) to Adult Mental Health Services (AMHS): A Meta-Synthesis of Parental and Professional Perspectives by Hill et al (2019)
- Barriers and Facilitators to the Successful Transition of Adolescents Living with HIV from Pediatric to Adult Care in Low and Middle-Income Countries: A Systematic Review and Policy Analysis by Jones et al (2019)
- Barriers and Characteristics for Successful Transition to Adult Healthcare for Individuals with Cerebral Palsy: A Systematic Review by Lilly et al (2019)
- Training of Adult Psychiatrists and Child and Adolescent Psychiatrists in Europe: A Systematic Review of Training Characteristics and Transition from Child/Adolescent to Adult Mental Health Services by Russet et al (2019)
- A Systematic Review of Transition Readiness in Youth with Chronic Disease by Varty & Popejoy (2019)
- The Impact of Age of Transfer on Outcomes in the Transition from Pediatric to Adult Health Systems: A Systematic Review of Reviews by Yassaee et al (2019)
- Barriers to Transition From Pediatric to Adult Care: A Systematic Review by Gray et al (2018)
- Review: Experiences of Healthcare Transitions for Young People with Attention Deficit Hyperactivity Disorder: A Systematic Review of Qualitative Research by Price et al (2018)
- Healthcare Transition in Pediatrics and Young Adults with Inflammatory Bowel Disease: A Scoping Review by Rohatinsky et al (2018)
- Measurable Outcomes After Transfer from Pediatric to Adult Providers in Youth With Chronic Illness by Coyne et al (2017)
- Outcome Evidence for Structured Pediatric to Adult Health Care Transition Interventions: A Systematic Review by Gabriel et al (2017)
- Parenting a Child with Chronic Illness as They Transition Into Adulthood: A Systematic Review and Thematic Synthesis of Parents' Experiences by Heath et al (2017)
- Methodology Used in Comparative Studies Assessing Programmes of Transition from Paediatrics to Adult Care Programmes: A Systematic Review by Le Roux et al (2017)
- Preventing Youth from Falling Through the Cracks Between Child/Adolescent and Adult Mental Health Services: A Systematic Review of Models of Care by Nguyen at al (2017)
- Systematic Review: Health Care Transition Practice Service Models by Betz et al (2016)
- Primary Care Interventions to Improve Transition of Youth With Chronic Health Conditions from Paediatric to Adult Healthcare: A Systematic Review by Bhawra et al (2016)
- Transition of Care for Adolescents from Paediatric Services to Adult Health Services by Campbell et al (2016)
- A Scoping Review of Evaluated Interventions Addressing Developmental Transitions for Youth with Mental Health Disorders by Di Rezze et al (2016)
- Effectiveness of Health System Services and Programs for Youth to Adult Transitions in Mental Health Care: A Systematic Review of Academic Literature by Embrett et al (2016)
- Living a Normal Life in an Extraordinary Way: A Systematic Review Investigating Experiences of Families of Young People's Transition Into Adulthood When Affected by a Genetic and Chronic Childhood Condition by Waldbath et al (2016)
- Systematic Review of the Impact of Transition Interventions for Adolescents with Chronic Illness on Transfer from Pediatric to Adult Healthcare by Chu et al (2015)
- Experiences and Outcomes of Transition from Pediatric to Adult Health Care Services for Young People with Congenital Heart Disease: A Systematic Review by Heery et al (2015)
- Uncharted Territory: Systematic Review of Providers' Roles, Understanding, and Views Pertaining to Health Care Transition by Nehring et al (2015)
- Transition to Adult Services for Young People with Mental Health Needs: A Systematic Review by Paul et al (2015)
- Measuring the "Triple Aim" in Transition Care: A Systematic Review by Prior et al (2014)
- Measures of Readiness to Transition to Adult Health Care for Youth with Chronic Physical Health Conditions: A Systematic Review and Recommendations for Measurement Testing and Development by Schwartz et al (2014)
- The Experiences and Impact of Transition from Child to Adult Healthcare Services for Young People with Type 1 Diabetes: A Systematic Review by Sheehan et al (2014)
HCT Articles Using the National Survey of Children's Health
- Readiness for transition to adult health care among US adolescents, 2016–2020 by Mulkey et al (2022)
- Trends and Disparities in Health Care Transition Preparation from 2016 to 2019: Findings from the US National Survey of Children's Health by Javalkar et al (2022)
- Associations Between Health Care Transition Preparation Among Youth in the US and Other Components of a Well-Functioning System of Services by Ilango et al (2021)
- Health Care Transition Services and Adaptive and Social Emotional Functioning of Youth with Autism Spectrum Disorder by Zeng et al (2021)
- Support for Transition from Adolescent to Adult Health Care Among Adolescents With and Without Mental, Behavioral, and Developmental Disorders — United States, 2016–2017 by Leeb et al (2020)
- Health Care Transition Planning Among Youth with ASD and Other Mental, Behavioral, and Developmental Disorders by Zablotsky et al (2020)
- Transition Planning Among US Youth With and Without Special Health Care Needs by Lebrun-Harris et al (2018)
Peer-Reviewed Articles that Implement the Six Core Elements
- Care Transitions for Young Adults With Special Health Care Needs by Giammona et al (2022)
- Improved Health Care Transition for Young Adults with Developmental Disabilities referred from Designated Transition Clinics by Fremion et al (2022)
- Design and Evaluation of a Pediatric Resident Health Care Transition Curriculum by Kaushik & Niebuhr (2022)
- Transition to adult care for youth with medical complexity: Assessing needs and setting priorities for a health care improvement initiative by Li et al (2022)
- Feasibility and use of a transition process planning and communication tool among multiple subspecialties within a pediatric health system by Mulchan et al (2021)
- Transition Navigator Intervention Improves Transition Readiness to Adult Care for Youth with Sickle Cell Disease by Manwani et al (2021)
- Improving Health Care Transitions for Children and Youth With Special Health Care Needs by Okumura et al (2021)
- Transitioning youth with autism spectrum disorders and other special health care needs into adult primary care: A provider survey by Ames et al (2021)
- Development and implementation of health care transition resources for youth with autism spectrum disorders within a primary care medical home by Harris et al (2021)
- A pilot project: Improving the transition care process for neurosurgical adolescent patients with indwelling shunts to adult care by Johnson et al (2021)
- Improving Adolescent and Young Adult Engagement in the Process of Transitioning to Adult Care by Lestishock et al (2021)
- A Multidisciplinary Approach to Improving Transition Readiness in Pediatric Liver Transplant Recipients by Shapiro et al (2020)
- Youths' Experiences of Transition from Pediatric to Adult Care: An Updated Qualitative Metasynthesis by Varty et al (2020)
- Development and Implementation of Health Care Transition Resources for Youth with Autism Spectrum Disorders within a Primary Care Medical Home by Harris et al (2020)
- Health Care Transition in School-Based Health Centers: A Pilot Study by White et al (2020)
- Priorities and Outcomes for Youth-Adult Transitions in Hospital Care: Perspectives of Inpatient Clinical Leaders at US Children’s Hospitals by Coller et al (2020)
- Getting Ready for Adult Healthcare: Designing a Chatbot to Coach Adolescents with Special Health Needs Through the Transitions of Care by Beaudry et al (2019)
- A Multidisciplinary Transition Consult Service: Patient Referral Characteristics by Razon et al (2019)
- Evaluation of a Health Care Transition Improvement Process in Seven Large Health Care Systems by Jones et al (2019)
- Implementing a Structured Health Care Transition (HCT) Process for Sickle Cell Disease (SCD) Using Quality Improvement: Early Results of a SCD HCT Learning Collaborative by Osunkwo et al (2019)
- A Program of Transition to Adult Care for Sickle Cell Disease by Saulsberry et al (2019)
- Use of Transition Resources by Primary Care Providers for Youth With Intellectual and Developmental Disabilities by Dressler et al (2018)
- Perceptions of Health Care Transition Care Coordination in Patients with Chronic Illness by Lemke et al (2018)
- Transitioning from General Pediatric to Adult-Oriented Inpatient Care: National Survey of US Children’s Hospitals by Coller et al (2018)
- Transfer from Pediatric to Adult Endocrinology by Jones et al (2017)
- Using Quality Improvement in Resident Education to Improve Transition Care by Volertas & Rossi-Foulkes (2017)
- Incorporating the Six Core Elements of Health Care Transition Into a Medicaid Managed Care Plan: Lessons Learned From a Pilot Project by McManus et al (2015)
- Pediatric to Adult Transition: A Quality Improvement Model for Primary Care by McManus et al (2015)
HCT Recommendations and Organization Statements that Incorporate the Six Core Elements
- National Standards for Systems of Care for Children and Youth with Special Health Care Needs by The Association of Maternal & Child Health Programs (2017)
- National Care Coordination Standards for Children and Youth with Special Health Care Needs (CYSHCN) Implementation Guide by the National Academy for State Health Policy (2022)
- Advances in Managing Transition to Adulthood for Adolescents With Congenital Heart Disease: A Practical Approach to Transition Program Design: A Scientific Statement From the American Heart Assoc by John et al (2022)
- Falling Through the Cracks: The Current Gap in the Health Care Transition of Patients With Kawasaki Disease: A Scientific Statement From the American Heart Association by Dahdah et al (2021)
- SAHM Position Paper: Transition to Adulthood for Youth With Chronic Conditions and Special Health Care Needs by Society for Adolescent Health and Medicine (2020)
- NAPNAP Position Statement on Supporting the Transition from Pediatric to Adult-Focused Health Care by Lestishock et al (2020)
- Health Care Transition in Pediatric Neurosurgery: A Consensus Statement from the American Society of Pediatric Neurosurgeons by Rocque et al (2020)
- Recommendations for Successful Transition of Adolescents with Inflammatory Bowel Diseases to Adult Care by Shapiro et al (2020)
- 2018 AAP/AAFP/ACP Clinical Report: Supporting the Health Care Transition from Adolescence to Adulthood in the Medical Home by White et al (2018)
Commentaries/Editorials that Discuss the Six Core Elements
- Health Care Gap Affects 20% of United States Population: Transition from Pediatric to Adult Health Care by McManus et al (2020)
- Implementing a Nationally Recognized Pediatric-to-Adult Transitional Care Approach in a Major Children's Hospital by Hickam et al (2018)
- Readying Youth and Young Adults for Transition to Adult Care During Preventive Care Visits: New Clinician Toolkit by White et al (2018)
- Transitioning Wisely: Improving the Connection from Pediatric to Adult Health Care by White & Ardoin (2015)
- The Promise and Potential of Adolescent Engagement in Health by McManus et al (2014)
