Resources & Research

Payment

• Coding Resources from the American Academy of Family Physicians
• Coding Resources from the American Academy of Pediatrics
• Coding Resources from the American College of Physicians
• Coding Resources from the American Medical Association
• Recommendations for Value-Based Transition Payment for Pediatric and Adult Health Care Systems: A Leadership Roundtable Report by The National Alliance to Advance Adolescent Health
• The Business Case for Pediatric-to-Adult Health Care Transition with funding from the Lucile Packard Foundation for Children’s Health

Got Transition Resources

• 2021 Coding and Payment Tip Sheet for Transition from Pediatric to Adult Health Care in partnership with The American Academy of Pediatrics
• Letter Template for Pediatric to Adult Transition Codes in partnership with the American Academy of Pediatrics
• Medicaid Managed Care Contract Language to Expand the Availability of Pediatric-to-Adult Transitional Care with funding from Lucile Packard Foundation for Children's Health
• Webinar Recording: Medicaid Managed Care Contract Provisions for Pediatric to Adult Transitional Care: Suggested Options and State Examples with funding from Lucile Packard Foundation for Children's Health
• Webinar Slides: Medicaid Managed Care Contract Provisions for Pediatric to Adult Transitional Care: Suggested Options and State Examples with funding from Lucile Packard Foundation

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Systematic and Scoping Reviews on HCT

• Patients’ attitudes and experiences of transition from paediatric to adult healthcare in rheumatology: a qualitative systematic review by Kelly et al (2020)
• Youths' Experiences of Transition from Pediatric to Adult Care: An Updated Qualitative Metasynthesis by Varty et al (2020)
• Healthcare Retention and Clinical Outcomes Among Adolescents Living with HIV after Transition from Pediatric to Adult Care: A Systematic Review by Ritchwood et al (2020)
• Transition from Pediatric to Adult Follow-Up Care in Childhood Cancer Survivors: A Systematic Review by Otth et al (2020)
• Systematic Narrative Review of Pediatric-to-Adult Care Transition Models for Youth with Pediatric-Onset Chronic Conditions by Marani et al (2020)
• Identifying Core Components and Indicators of Successful Transitions from Child to Adult Mental Health Services: A Scoping Review by Cleverley et al (2020)
• Spotlight on Transition in Patients with Inflammatory Bowel Disease: A Systematic Review by Eros et al (2020)
• Outcomes of Pediatric to Adult Health Care Transition Interventions: An Updated Systematic Review by Schmidt et al (2020)
• Recommendations for Successful Transition of Adolescents with Inflammatory Bowel Diseases to Adult Care by Shapiro et al (2020)
• Methods for Measuring the Time of Transfer from Pediatric to Adult Care for Chronic Conditions Using Administrative Data: A Scoping Review by Shulman, et al (2020)
• Outcomes of Young People Who Reach the Transition Boundary of Child and Adolescent Mental Health Services: A Systematic Review by Appleton et al (2019)
• Transitioning Adolescents to Adult Nephrology Care: A Systematic Review of the Experiences of Adolescents, Parents, and Health Professionals by Crawford et al (2019)
• Disparities Based on Race, Ethnicity, and Socioeconomic Status Over the Transition to Adulthood Among Adolescents and Young Adults on the Autism Spectrum: a Systematic Review by Eilenberg et al (2019)
• An Evidence Map for Interventions Addressing Transition from Pediatric to Adult Care: A Systematic Review of Systematic Reviews by Hart et al (2019)
• Review: Transition from Child and Adolescent Mental Health Services (CAMHS) to Adult Mental Health Services (AMHS): A Meta-Synthesis of Parental and Professional Perspectives by Hill et al (2019)
• Barriers and Facilitators to the Successful Transition of Adolescents Living with HIV from Pediatric to Adult Care in Low and Middle-Income Countries: A Systematic Review and Policy Analysis by Jones et al (2019)
• Barriers and Characteristics for Successful Transition to Adult Healthcare for Individuals with Cerebral Palsy: A Systematic Review by Lilly et al (2019)
• Training of Adult Psychiatrists and Child and Adolescent Psychiatrists in Europe: A Systematic Review of Training Characteristics and Transition from Child/Adolescent to Adult Mental Health Services by Russet et al (2019)
• A Systematic Review of Transition Readiness in Youth with Chronic Disease by Varty & Popejoy (2019)
• The Impact of Age of Transfer on Outcomes in the Transition from Pediatric to Adult Health Systems: A Systematic Review of Reviews by Yassaee et al (2019)
• Barriers to Transition From Pediatric to Adult Care: A Systematic Review by Gray et al (2018)
• Review: Experiences of Healthcare Transitions for Young People with Attention Deficit Hyperactivity Disorder: A Systematic Review of Qualitative Research by Price et al (2018)
• Healthcare Transition in Pediatrics and Young Adults with Inflammatory Bowel Disease: A Scoping Review by Rohatinsky et al (2018)
• Measurable Outcomes After Transfer from Pediatric to Adult Providers in Youth With Chronic Illness by Coyne et al (2017)
• Outcome Evidence for Structured Pediatric to Adult Health Care Transition Interventions: A Systematic Review by Gabriel et al (2017)
• Parenting a Child with Chronic Illness as They Transition Into Adulthood: A Systematic Review and Thematic Synthesis of Parents' Experiences by Heath et al (2017)
• Methodology Used in Comparative Studies Assessing Programmes of Transition from Paediatrics to Adult Care Programmes: A Systematic Review by Le Roux et al (2017)
• Preventing Youth from Falling Through the Cracks Between Child/Adolescent and Adult Mental Health Services: A Systematic Review of Models of Care by Nguyen at al (2017)
• Systematic Review: Health Care Transition Practice Service Models by Betz et al (2016)
• Primary Care Interventions to Improve Transition of Youth With Chronic Health Conditions from Paediatric to Adult Healthcare: A Systematic Review by Bhawra et al (2016)
• Transition of Care for Adolescents from Paediatric Services to Adult Health Services by Campbell et al (2016)
• A Scoping Review of Evaluated Interventions Addressing Developmental Transitions for Youth with Mental Health Disorders by Di Rezze et al (2016)
• Effectiveness of Health System Services and Programs for Youth to Adult Transitions in Mental Health Care: A Systematic Review of Academic Literature by Embrett et al (2016)
• Living a Normal Life in an Extraordinary Way: A Systematic Review Investigating Experiences of Families of Young People's Transition Into Adulthood When Affected by a Genetic and Chronic Childhood Condition by Waldbath et al (2016)
• Systematic Review of the Impact of Transition Interventions for Adolescents with Chronic Illness on Transfer from Pediatric to Adult Healthcare by Chu et al (2015)
• Experiences and Outcomes of Transition from Pediatric to Adult Health Care Services for Young People with Congenital Heart Disease: A Systematic Review by Heery et al (2015)
• Uncharted Territory: Systematic Review of Providers' Roles, Understanding, and Views Pertaining to Health Care Transition by Nehring et al (2015)
• Transition to Adult Services for Young People with Mental Health Needs: A Systematic Review by Paul et al (2015)
• Measuring the "Triple Aim" in Transition Care: A Systematic Review by Prior et al (2014)
• Measures of Readiness to Transition to Adult Health Care for Youth with Chronic Physical Health Conditions: A Systematic Review and Recommendations for Measurement Testing and Development by Schwartz et al (2014)
• The Experiences and Impact of Transition from Child to Adult Healthcare Services for Young People with Type 1 Diabetes: A Systematic Review by Sheehan et al (2014)

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Articles Related to the National Survey of Children's Health and HCT

• Associations Between Health Care Transition Preparation Among Youth in the US and Other Components of a Well-Functioning System of Services by Ilango et al (2021)
• Health Care Transition Services and Adaptive and Social Emotional Functioning of Youth with Autism Spectrum Disorder by Zeng et al (2021)
• Support for Transition from Adolescent to Adult Health Care Among Adolescents With and Without Mental, Behavioral, and Developmental Disorders — United States, 2016–2017 by Leeb et al (2020)
• Health Care Transition Planning Among Youth with ASD and Other Mental, Behavioral, and Developmental Disorders by Zablotsky et al (2020)
• Transition Planning Among US Youth With and Without Special Health Care Needs by Lebrun-Harris et al (2018)

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Peer-Reviewed Articles that Implement the Six Core Elements

• Transitioning youth with autism spectrum disorders and other special health care needs into adult primary care: A provider survey by Ames et al 2021
• Development and implementation of health care transition resources for youth with autism spectrum disorders within a primary care medical home by Harris et al 2021
• A pilot project: Improving the transition care process for neurosurgical adolescent patients with indwelling shunts to adult care by Johnson et al 2021
• Improving Adolescent and Young Adult Engagement in the Process of Transitioning to Adult Care by Lestishock et al (2021)
• A Multidisciplinary Approach to Improving Transition Readiness in Pediatric Liver Transplant Recipients by Shapiro et al (2020)
• Youths' Experiences of Transition from Pediatric to Adult Care: An Updated Qualitative Metasynthesis by Varty et al (2020)
• Development and Implementation of Health Care Transition Resources for Youth with Autism Spectrum Disorders within a Primary Care Medical Home by Harris et al (2020)
• Health Care Transition in School-Based Health Centers: A Pilot Study by White et al (2020)
• Priorities and Outcomes for Youth-Adult Transitions in Hospital Care: Perspectives of Inpatient Clinical Leaders at US Children’s Hospitals by Coller et al (2020)
• Getting Ready for Adult Healthcare: Designing a Chatbot to Coach Adolescents with Special Health Needs Through the Transitions of Care by Beaudry et al (2019)
• Evaluation of a Health Care Transition Improvement Process in Seven Large Health Care Systems by Jones et al (2019)
• Implementing a Structured Health Care Transition (HCT) Process for Sickle Cell Disease (SCD) Using Quality Improvement: Early Results of a SCD HCT Learning Collaborative by Osunkwo et al (2019)
• A Program of Transition to Adult Care for Sickle Cell Disease by Saulsberry et al (2019)
• Perceptions of Health Care Transition Care Coordination in Patients with Chronic Illness by Lemke et al (2018)
• Transitioning from General Pediatric to Adult-Oriented Inpatient Care: National Survey of US Children’s Hospitals by Coller et al (2018)
• Transfer from Pediatric to Adult Endocrinology by Jones et al (2017)
• Using Quality Improvement in Resident Education to Improve Transition Care by Volertas & Rossi-Foulkes (2017)
• Incorporating the Six Core Elements of Health Care Transition Into a Medicaid Managed Care Plan: Lessons Learned From a Pilot Project by McManus et al (2015)
• Pediatric to Adult Transition: A Quality Improvement Model for Primary Care by McManus et al (2015)

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HCT Recommendations and Organization Statements that Incorporate the Six Core Elements

• NAPNAP Position Statement on Supporting the Transition from Pediatric to Adult-Focused Health Care by Lestishock et al (2020)
• Health Care Transition in Pediatric Neurosurgery: A Consensus Statement from the American Society of Pediatric Neurosurgeons by Rocque et al (2020)
• Recommendations for Successful Transition of Adolescents with Inflammatory Bowel Diseases to Adult Care by Shapiro et al (2020)
• 2018 AAP/AAFP/ACP Clinical Report: Supporting the Health Care Transition from Adolescence to Adulthood in the Medical Home by White et al (2018)
• Standards for Systems of Care for Children and Youth with Special Health Care Needs by The Association of Maternal & Child Health Programs (2017)

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Commentaries/Editorials that Discuss the Six Core Elements

• Health Care Gap Affects 20% of United States Population: Transition from Pediatric to Adult Health Care by McManus et al (2020)
• Implementing a Nationally Recognized Pediatric-to-Adult Transitional Care Approach in a Major Children's Hospital by Hickam et al (2018)
• Readying Youth and Young Adults for Transition to Adult Care During Preventive Care Visits: New Clinician Toolkit by White et al (2018)
• Transitioning Wisely: Improving the Connection from Pediatric to Adult Health Care by White & Ardoin (2015)
• The Promise and Potential of Adolescent Engagement in Health by McManus et al (2014)

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