State Title V
General Resources
- National Network for Advancing Systems of Services for Children and Youth with Special Health Care Needs (CYSHCN) with Catalyst Center (Boston University) and National Resource Center for Patient/Family-Centered Medical Home (American Academy of Pediatrics)
- The Association of Maternal & Child Health Programs (AMCHP)
- Blueprint for Change: A National Framework for a System of Services for Children and Youth with Special Health Care Needs by the Maternal and Child Health Bureau (2022)
- National Care Coordination Standards for Children and Youth with Special Health Care Needs (CYSHCN) Implementation Guide by the National Academy for State Health Policy (2022)
- Title V Maternal and Child Health Services Block Grant Program
- The Family-Centered Care Assessment for Families by Family Voices
- Strengthen the Evidence Base for Maternal and Child Health Programs: NPM 12 Health Care Transition by the National Center for Education in Maternal and Child Health [Full Report]
- Webinar Recording: Resources, Strategies, and Experiences to Advance NPMs 11 & 12 (Health Care Transition) by Bright Futures, with Got Transition
- Webinar Slides: Resources, Strategies, and Experiences to Advance NPMs 11 & 12 (Health Care Transition) by Bright Futures, with Got Transition
Got Transition Resources
- Webinar Recording: "Preventive Care and Health Care Transition: Bringing Them Together" by Got Transition and the Adolescent & Young Adult Health National Resource Center
- Webinar Slides: "Preventive Care and Health Care Transition: Bringing Them Together" by Got Transition and the Adolescent & Young Adult Health National Resource Center
- Implementation Toolkit for National Performance Measure 12 in partnership with the Association of Maternal & Child Health Programs
- Customizable State Tip Sheet: Improving the Health of Youth and Young Adults in [State] Through Health Care Transition
Block Grant Reviews
Got Transition Resources
- Health Care Transition in State Title V Programs: A Review of 2021 Block Grant Applications/2019 Annual Reports and Recommendations
- Health Care Transition in State Title V Programs: A Review of 2018 Block Grant Applications and Recommendations for 2020
- State Title V Health Care Transition Performance Objectives and Strategies: Current Snapshot and Suggestions (2016)
- Aligning National Title V Performance Measures on Transition, Medical Home, Preventive Care, and Insurance: Suggested Strategies for States (2016)
Care Coordination
Got Transition Resources
- The Changes in Implementation of Health Care Transition in State Title V Care Coordination Programs: 2017-2021
- The Progression of Health Care Transition Implementation in State Title V Care Coordination Programs from 2017 to 2019
- A Comparison of Health Care Transition Implementation in State Title V Care Coordination Programs Between 2017 and 2018
- Baseline Assessment of Health Care Transition Implementation in Title V Care Coordination Programs (2017)
- Assessment of Health Care Transition Activities in Care Coordination Programs
- Webinar Session 1: Starting A Transition Improvement Process Using the Six Core Elements of Health Care Transition
- Webinar Session 2: Transition Preparation
- Webinar Session 3: Transfer to Adult Care
- Webinar Session 4: Integration into Adult Care
- Webinar Session 5: Youth, Young Adult & Parent Engagement
State HCT Data from the National Survey of Children's Health
DC Resources
The National Alliance/Got Transition Resources
- Navigation Tool for Youth and Families in the District of Columbia Moving from Child to Adult Public Program Services with funding from DC Health
- Medicaid Opportunities for Supporting Innovations in Transition from Pediatric to Adult Care for DC Youth and Young Adults: A Discussion Piece with funding from DC Health
