Resources & Research

General Resources

• National Network for Advancing Systems of Services for Children and Youth with Special Health Care Needs (CYSHCN) with Catalyst Center (Boston University) and National Resource Center for Patient/Family-Centered Medical Home (American Academy of Pediatrics)
• The Association of Maternal & Child Health Programs (AMCHP)
• Title V Maternal and Child Health Services Block Grant Program
• The Family-Centered Care Assessment for Families by Family Voices
• Strengthen the Evidence Base for Maternal and Child Health Programs: NPM 12 Health Care Transition by the National Center for Education in Maternal and Child Health [Full Report]
• Webinar Recording: Resources, Strategies, and Experiences to Advance NPMs 11 & 12 (Health Care Transition) by Bright Futures, with Got Transition
• Webinar Slides: Resources, Strategies, and Experiences to Advance NPMs 11 & 12 (Health Care Transition) by Bright Futures, with Got Transition

Got Transition Resources

• Implementation Toolkit for National Performance Measure 12 in partnership with the Association of Maternal & Child Health Programs
• Customizable State Tip Sheet: Improving the Health of Youth and Young Adults in [State] Through Health Care Transition

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Block Grant Reviews

Got Transition Resources

• Health Care Transition in State Title V Programs: A Review of 2021 Block Grant Applications/2019 Annual Reports and Recommendations
• Health Care Transition in State Title V Programs: A Review of 2018 Block Grant Applications and Recommendations for 2020
• State Title V Health Care Transition Performance Objectives and Strategies: Current Snapshot and Suggestions (2016)
• Aligning National Title V Performance Measures on Transition, Medical Home, Preventive Care, and Insurance: Suggested Strategies for States (2016)

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Care Coordination

Got Transition Resources

• The Progression of Health Care Transition Implementation in State Title V Care Coordination Programs from 2017 to 2019
• A Comparison of Health Care Transition Implementation in State Title V Care Coordination Programs Between 2017 and 2018
• Baseline Assessment of Health Care Transition Implementation in Title V Care Coordination Programs (2017)
• Assessment of Health Care Transition Activities in Care Coordination Programs
• Webinar Session 1: Starting A Transition Improvement Process Using the Six Core Elements of Health Care Transition
• Webinar Session 2: Transition Preparation
• Webinar Session 3: Transfer to Adult Care
• Webinar Session 4: Integration into Adult Care
• Webinar Session 5: Youth, Young Adult & Parent Engagement

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State HCT Data from the National Survey of Children's Health

• Data Resource Center for Child & Adolescent Health (DRC)

Got Transition Resources

• State, Regional, and National Health Care Transition Performance for Youth with and without Special Health Care Needs from the 2018/2019 National Survey of Children's Health

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DC Resources

The National Alliance/Got Transition Resources

• Navigation Tool for Youth and Families in the District of Columbia Moving from Child to Adult Public Program Services with funding from DC Health
• Medicaid Opportunities for Supporting Innovations in Transition from Pediatric to Adult Care for DC Youth and Young Adults: A Discussion Piece with funding from DC Health

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