Youth & Families
Decision-Making and Guardianship
- National Resource Center for Supported Decision-Making
- Center on Youth Voice, Youth Choice (CYVYC)
- Understanding Supported Decision-Making and Alternatives to Guardianship by Quality Trust
- Charting the Life Course Tool for Exploring Decision Making Supports by the University of Missouri-Kansas City Institute for Human Development
- Supported Decision-Making Resource Library from the American Civil Liberties Union
- The Right to Make Choices: International Laws and Decision-Making by People with Disabilities by the Autistic Self Advocacy Network
Got Transition Resources
Finding and Using Adult Health Care
- Finding Adult Providers by the American Academy of Pediatrics' Illinois Chapter
- Finding and Using Adult Health Care by the Kentucky TEACH Project
- Transition to Adult Care from PACER's National Parent Center on Transition and Employment
- Transition to Adulthood: A Health Care Guide for Youth and Families by the Autistic Self Advocacy Network
Got Transition Resources
- 5 Steps to Prepare for Health Care Transition
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A Family Toolkit: Pediatric-to-Adult Health Care Transition
[En Español] - Do you want to learn about transitioning to adult health care? (Infographic)
- Finding an Adult Doctor
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Health Care Transition Timeline for Parents/Caregivers
[En Español] -
Health Care Transition Timeline for Youth and Young Adults
[En Español] -
Planning to Move from Pediatric to Adult Care? Here's How They Can Differ
[En Español] -
Preparing for the Transition from Pediatric to Adult Health Care: Parent Guide
[En Español] - Prueba: ¿Está listo para la transición a la atención médica para adultos? (Quiz)
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Questions to Ask Your Child's Doctor About Transitioning to Adult Health Care (for Parents and Caregivers) in partnership with Family Voices
[En Español] -
Questions to Ask Your Doctor About Transitioning to Adult Health Care (for Youth and Young Adults) in partnership with Family Voices
[En Español] -
Setting up the "Medical ID" Feature on Apple's Health App and on Android Phones
[En Español] -
System Differences Between Pediatric and Adult Health Care
[En Español]
Health Insurance
SSI Benefits
- A Guide to Supplemental Security Income (SSI) for Groups and Organizations by the Social Security Administration
- Retirement Benefits from the Social Security Administration
- Spotlight on Achieving a Better Life Experience (ABLE) Accounts from the Social Security Administration
- Ticket to Work Program from the Social Security Administration
- What You Need to Know About Your Social Security Income (SSI) When You Turn 18 by the Social Security Administration
Stories
Got Transition Resources
- Ben's Transition Story: An Evolving Journey by Barbara Katz
- Reflection on Chronic Conditions and Identity by Dylan Marcy
- The Transition Tango by Wanda P. Felty
- Transition Baby Steps That Lead to Major Milestones: It Starts with YOU! by Cristin Lind
- Transitions in Advocacy: Confessions of a Controlling Mother by Janet DesGeorges
- Transition Story by Anna Cyr
Radio Episodes
Webinars and Videos
- Transition of Care Video Series by the Child Neurology Foundation
- Telehealth and Health Care Transition (Animated Video) with Family Voices and CT KASA
Got Transition Resources
- Seminario Virtual: Guía para la Familia: Transición de un modelo pediátrico de servicios de salud a uno centrado en adultos
- Webinar Recording: Family Guide: Transitioning from a Pediatric to an Adult-Focused Model of Health Services
- Webinar Slides: Guía para la Familia/Family Guide
-
What is Health Care Transition (HCT)? (Animated Video)
[En Español] - Webinar: A Family Toolkit for Pediatric to Adult Health Care Transition
- Dr. Knotright
- Dr. Right
- Heading for College with Special Health Care Needs: Student Preparation for a Successful Transition
- Health Care Transition for Adolescents and Young Adults: An Online Video CME/CEU Series in partnership with Health Services for Children with Special Needs, Inc. with funding from DC Health
- Making Health Care Transition Work for Youth with Autism: Youth and Parent Perspectives and Resources in partnership with Family Voices and the National Institute of Mental Health
Youth and Family Partner Organizations
- Able South Carolina (ABLE SC)
- Allies Cultivating Change by Empowering Positive Transformation (ACCEPT)
- ASK Family Services
- Autism Society of America
- Center for Parent Information and Resources
- Family Voices
- Family-to-Family Health Information Centers (F2Fs)
- Foster Club: The National Network for Youth in Foster Care
- Genetic Alliance
- Institute for Patient- and Family-Centered Care (IPFCC)
- Jack and Jill of America
- National Alliance on Mental Illness (NAMI)
- National Down Syndrome Congress (NDSC)
- National Family Association for Deaf-Blind (NFADB)
- National Federation of Families for Children's Mental Health (NFFCMH)
- Sickle Cell Disease Association of America (SCDAA)
- SPAN Parent Advocacy Network
- Special Olympics International
- TASH
- The Arc
- United Cerebral Palsy (UCP)
- Young Invincibles
- Youth as Self Advocates (YASA)
- Youth MOVE National
Health and Wellness Planning for High School Students:
Maryland School Mental Health Transition Resources
For use by school mental health providers, school psychologists, professional school counselors, and school social workers.
With funding by the Maryland Department of Health's Office for Genetics and People with Special Health Care Needs
Complete Resource Package
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Individual Resources


