Resources & Research

Decision-Making and Guardianship

• National Resource Center for Supported Decision-Making
• Center on Youth Voice, Youth Choice (CYVYC)
• Understanding Supported Decision-Making and Alternatives to Guardianship by Quality Trust
• Charting the Life Course Tool for Exploring Decision Making Supports by the University of Missouri-Kansas City Institute for Human Development
• Supported Decision-Making Resource Library from the American Civil Liberties Union
• The Right to Make Choices: International Laws and Decision-Making by People with Disabilities by the Autistic Self Advocacy Network

Finding and Using Adult Health Care

• Finding Adult Providers by the American Academy of Pediatrics' Illinois Chapter
• Finding Adult Health Care by the Medical Home Portal
• Transition to Adult Care from PACER's National Parent Center on Transition and Employment
• Transition to Adulthood: A Health Care Guide for Youth and Families by the Autistic Self Advocacy Network

Health Insurance

• The Catalyst Center
• HealthCare.gov: Getting Covered if You're Under 30
• HealthCare.gov: Need Health Insurance?
• Health Insurance Basics from TeensHealth from Nemours
• Healthy Adulting Toolkit by Young Invincibles

SSI Benefits

• A Guide to Supplemental Security Income (SSI) for Groups and Organizations by the Social Security Administration
• Retirement Benefits from the Social Security Administration
• Spotlight on Achieving a Better Life Experience (ABLE) Accounts from the Social Security Administration
• Ticket to Work Program from the Social Security Administration
• What You Need to Know About Your Social Security Income (SSI) When You Turn 18 by the Social Security Administration

Stories

Radio Episodes

Webinars and Videos

• Transition of Care Video Series by the Child Neurology Foundation
• Telehealth and Health Care Transition (Animated Video) with Family Voices and CT KASA

Youth and Family Partner Organizations

• Allies Cultivating Change by Empowering Positive Transformation (ACCEPT)
• ASK Family Services
• Autism Society of America
• Center for Parent Information and Resources
• Family Voices
• Family-to-Family Health Information Centers (F2Fs)
• Foster Club: The National Network for Youth in Foster Care
• Genetic Alliance
• Institute for Patient- and Family-Centered Care (IPFCC)
• Jack and Jill of America
• National Alliance on Mental Illness (NAMI)
• National Down Syndrome Congress (NDSC)
• National Family Association for Deaf-Blind (NFADB)
• National Federation of Families for Children's Mental Health (NFFCMH)
• Sickle Cell Disease Association of America (SCDAA)
• SPAN Parent Advocacy Network
• Special Olympics International
• TASH
• The Arc
• United Cerebral Palsy (UCP)
• Young Invincibles
• Youth as Self Advocates (YASA)
• Youth MOVE National